This page contains a selection of the most important young carer research and publications. Research provides Carers NSW with a strong evidence base for carer advocacy and support programs. For research about carers of all ages, visit the Carers NSW website.

Carers NSW Publications

Carers NSW Young Carer Research Project

On 15 July 2020 Carers NSW released the summary report on findings from research conducted with 28 young carers aged 16-25 from across NSW.

A number of recent studies have highlighted the challenges facing young people as a result of the COVID-19 pandemic. Like their peers, young people aged 16 to 25 who are caring for a family member or friend have experienced significant change and instability during this unprecedented period.

During the peak of the COVID-19 lockdown, Carers NSW conducted online interviews and focus groups with 28 young carers to better understand their experiences and support needs and to learn how to engage with them more effectively. The summary report released today includes powerful stories of young people caring for loved ones while juggling study, work, family and social responsibilities.

Carers NSW Young Carer Policy Statement

Our Young Carer Policy Statement can be accessed here.

Young Carers: Barriers to Accessing Employment

Click here to download this paper.

Carers at University: Supporting Student Carers

Click here to download this factsheet.

If you work with young carers, young people or are simply interested in learning more about how we can better identify and support young carers, get in touch with the team today by calling (02) 9280 4744 or email [email protected]. The creation of the statement was funded by the NSW Department of Family and Community Services.

NSW Government Publications

NSW Carers Strategy 2014 – 2019

The former Minister for Ageing and Disability Services, the Hon. John Ajaka MLC, launched the NSW Carers Strategy at NSW Parliament House on 7 August 2014. The five year strategy is designed so government, community and corporate sectors can work together to achieve better outcomes and support for carers. See here for more information.

Identifying and Supporting Young Carers

The Department of Family and Community Services (FACS) has created a website for front line workers who want to learn more about young carers. The website contains an eLearning tool and resources and links with further information about young carers and some of the services available to them in NSW. You can access the website and eLearning tool here.

In 2011 FACS also published Identifying and supporting young carers, a resource for staff in government departments and non-government organisations who need to know more about young carers. It provides basic information about young carers, their potential needs and services they can be referred to for assistance. Download the paper here.

Young Carer Research

Young carer research by the Social Policy Research Centre, University of NSW

Researchers at the Social Policy Research Centre (SPRC) produce invaluable research exploring the needs and experiences of young carers. Carers NSW had been a partner in much of this research. Key papers include:

  • Carers and social inclusion (2016), available here.
  • Young carers: Social policy impacts of the caring responsibilities of children and young adults (2011), available here.
  • Young carers in Australia: understanding the advantages and disadvantages of their care giving (2009), available here.
  • Young carers: their characteristics and geographical distribution (2009), available here.

Australian Institute of Family Studies

The Australian Institute of Family Studies regularly releases reports regarding carers. In 2017 the Institute published, the Growing Up in Australia report which highlighted the impact of caring for young carers in year 9 based on their NAPLAN reading and numeracy scores, available here.

Australian Institute of Health and Welfare

Every two years the Australian Institute of Health and Welfare releases a report regarding Australia’s Welfare system. Each report highlights issues experienced by informal carers, including young carers. See here to read the latest report.

Children of Parents with a Mental Illness (COPMI) research summaries

COPMI regularly produces research summaries called ‘Gateways to Evidence that MatterS’ (GEMS) focusing on recent Australian and international research concerning children (aged 0-18 years) of parents with a mental illness and their families. See here for more information.

Refugee and Migrant Young People with Caring Responsibilities: What do we know?

Produced by the Centre for Multicultural Youth (CMY), Ethnic Communities’ Council of Victoria (ECCV) and Carers Victoria – see the background paper and good practice guide.

CanTeen Research to Practice Papers

Issue 1: Supporting adolescent and young adult siblings of cancer patients: The family context – available here.

Issue 2: Supporting adolescent and young adult siblings of cancer patients in the education system – available here.