This page contains a selection of the most important young carer research and publications. Research provides Carers NSW with a strong evidence base for carer advocacy and support programs. For research about carers of all ages, visit the Carers NSW website.

Carers NSW Publications 

Carers NSW Young Carer Policy Kit

As part of our advocacy for young carers, Carers NSW has produced a Young Carer Policy Kit comprising:

  • The Carers NSW Young Carer Position Statement which outlines Carers NSW position on young carers
  • The Carers NSW Young Carer Strategy which identifies five priority areas to improve outcomes for young carers in NSW
  • The Carers NSW Young Carer Literature Review

If you work with young carers, young people or are simply interested in learning more about how we can better identify and support young carers – order your copy today. To order please contact the young carer team on 1800 242 636 or email [email protected] The creation of the kit was funded by the NSW Department of Family and Community Services.

NSW Government Publications

NSW Carers Strategy 2014 – 2019

Minister for Ageing and Disability Services, the Hon. John Ajaka MLC, launched the NSW Carers Strategy at NSW Parliament House on 7 August 2014. The five year strategy is designed so government, community and corporate sectors can work together to achieve better outcomes and support for carers. See here for more information.

Identifying and Supporting Young Carers

The Department of Family and Community Services (FACS) has created a website for front line workers who want to learn more about young carers. The website contains an eLearning tool and resources and links with further information about young carers and some of the services available to them in NSW. You can access the website and eLearning tool here.

In 2011 FACS also published Identifying and supporting young carers, a resource for staff in government departments and non-government organisations who need to know more about young carers. It provides basic information about young carers, their potential needs and services they can be referred to for assistance. Download the paper here.

Young Carer Research

Young carer research by the Social Policy Research Centre, University of NSW

Researchers at the Social Policy Research Centre (SPRC) produced invaluable research exploring the needs and experiences of young carers. Carers NSW was a partner in much of this research. Key papers include:

  •  Young carers: Social policy impacts of the caring responsibilities of children and young adults (2011), available here.
  • Young carers in Australia: understanding the advantages and disadvantages of their care giving (2009), available here.
  • Young carers: their characteristics and geographical distribution (2009), available here.

Children of Parents with a Mental Illness (COPMI) research summaries

COPMI regularly produces research summaries called ‘Gateways to Evidence that MatterS’ (GEMS) focusing on recent Australian and international research concerning children (aged 0-18 years) of parents with a mental illness and their families. See here for more information.

Refugee and Migrant Young People with Caring Responsibilities: What do we know?

Produced by the Centre for Multicultural Youth (CMY), Ethnic Communities’ Council of Victoria (ECCV) and Carers Victoria – see the background paper and good practice guide.

CanTeen Research to Practice Papers

Issue 1: Supporting adolescent and young adult siblings of cancer patients: The family context – available here.

Issue 2: Supporting adolescent and young adult siblings of cancer patients in the education system – available here.